Millie Smith and Lewis Cann were thrilled to learn they were expecting a baby, with Millie’s intuition hinting at the possibility of twins due to their family history. Their ultrasound confirmed her hunch but also brought the news of a severe condition affecting one of the babies.

Their daughter, born prematurely at thirty weeks, was diagnosed with anencephaly, a condition where the fetal nervous system, including the brain and spinal cord, doesn’t develop properly and is typically fatal.

Given their daughter’s limited time, the parents named her Skye before they said their goodbyes. They believed the name represented a place where Skye would always reside, a comforting thought as they navigated their grief.

Skye lived for just three hours, during which her parents cherished every moment with her. After her passing, they were provided with support from a special midwife and given access to a room called the “Daisy Room,” offering solace during their mourning.

However, Millie felt that Skye was forgotten afterward, which deeply saddened her. A thoughtless comment made by another parent, unaware of Millie’s loss, further compounded her grief.

In response, Millie initiated the purple butterfly sticker campaign, symbolizing babies lost in sets of multiples, to prevent similar misunderstandings in the future. The initiative, supported by the Skye High Foundation, has been widely adopted by hospitals across countries, offering support to grieving families.

Despite the challenges, Millie remains committed to raising awareness and providing support to families facing similar losses. Meanwhile, their second daughter, Callie, now seven years old, brings joy to their lives.